|Back to June Ed Reporter|
|NUMBER 197||THE NEWSPAPER OF EDUCATION RIGHTS||JUNE 2002|
A Parent's Nightmare:|
Losing a Child to Drug-Induced Psychosis
As awareness of the potential dangers of mind-altering drugs increases, state boards of education and state legislatures are making efforts to curb their use. Recent studies show that Ritalin and other psychotropic drugs can cause permanent changes in children's developing brains. Ritalin has been compared to cocaine for its addictive properties by the federal Drug Enforcement Agency (DEA), and the Brookhaven National Laboratory found it to be "more potent than cocaine on the dopamine system," an area of the brain many doctors believe is most affected by these drugs.
The Boards of Education of Texas and Colorado have adopted resolutions warning parents about the potential negative effects of these drugs, and the Connecticut legislature passed a law in 2001 "prohibiting any school personnel from recommending the use of psychotropic drugs for any child." A similar bill passed in Minnesota, and legislation is pending in Colorado, Michigan and Virginia. In Florida, lawmakers have attempted to curb the widespread use of psychotropic drugs on children in that state's foster care system. Last month, Rep. Sandra Murman (R-Tampa) introduced a bill to require all Florida school boards to forbid educators to recommend "psychotropic drugs."
Despite concerns, parents complain that some school districts bar children diagnosed with Attention Deficit Disorder (ADD) or Attention Deficit Hyperactivity Disorder (ADHD) from attending school unless they are taking Ritalin or other psychotropic drugs. In a high-profile case in 2000, the parents of a seven-year-old Albany, NY boy were ordered by a Family Court Judge to give their son Ritalin, even though it was causing sleeplessness and other personality changes. (See Education Reporter, Oct. 2000.)
In a particularly bizarre case, Joy and Kenny Johnston of Page, West Virginia endured a harrowing 7 « years of drug-induced psychosis with their son, Paul, who was given a long list of powerful mind-altering drugs to control behavior that teachers and school-recommended Medicaid-reimbursed physicians diagnosed as ADHD. (See list.)
In many states, schools create partnerships with healthcare providers in their communities, and Medicaid pays the bills. It has become, according to many state legislators and observers, a "cash cow" that victimizes children, parents and taxpayers. Diagnosing ADD
The Johnstons' nightmare began in the fall of 1993. Just weeks after their normal, exuberant five-year-old son started kindergarten at the local public school, his teacher complained that he was having trouble staying on task and remaining in his seat, and that he needed repeated "time-outs" for excessive talking. She explained to Mrs. Johnston that Paul's unacceptable behavior was due to a brain disorder, that the brains of "these children"are "wired in such a way" that they are unable to calm down or remain focused. She claimed that "nearly 30%" of children - mostly boys - have ADD or ADHD, and that medication was available to control it. She referred the Johnstons to a physician who she said treated children like Paul.
Paul's parents could not understand how something could be "wrong" with a child who behaved normally at home. They knew nothing about ADD or ADHD and balked at the suggestion of medication. They decided to try working with their son and provide additional discipline.
A few weeks later, the principal threatened to suspend Paul. In a meeting with the Johnstons, he and Paul's teacher presented a laundry list of the boy's undesirable behaviors. They insisted he be taken to a doctor and that "something be done" or he would be suspended from school and the Johnstons could face charges of "medical neglect."
When the principal continued to threaten suspension, the Johnstons reluctantly made an appointment with the school-recommended physician. Mrs. Johnston described the initial office visit in her diary of the family's long nightmare, which was published earlier this year by AmErica House in Baltimore under the title Altered States: Experimental Drugs, Expendable Children.
"When we arrived at Dr. Habash's office, there was a video playing about children with ADD, explaining what teachers look for and how it is more evident in the school setting than at home," Joy Johnston wrote. During the examination, Dr. Habash commented that Paul was very fidgety and that he could see what his teacher was talking about. "A hyperactive child cannot sit still long enough to learn," he said, "and is very disruptive to the rest of the class."
The doctor prescribed 5 mg. of Ritalin twice daily. "I was unsure about this," Mrs. Johnston wrote, "but the doctor seemed to know exactly what the teacher was complaining about and that Ritalin would help. So I agreed to give it a try. I did not know if the school would make good on the threats of child neglect or not, but I did not want to find out."
The Drugging Begins
The school recommended that Paul repeat kindergarten and his teacher referred the Johnstons to a new physician who she claimed "was considered the best in ADD." Dr. Frangoul prescribed five mgs. of Dexedrine along with the Ritalin. He said Paul "would get much better control over his hyperactivity" with the additional medication.
The school said Paul had a reading disability and recommended "homebound instruction" until his new medication could take effect. A teacher instructed him at home for the remainder of the school year, at which time he was promoted to first grade. During that summer, Paul's doctor took him off Ritalin and put him on a drug called Cylert along with the Dexedrine. When that didn't "work," he tried the then-experimental drug Adderall and stopped the Dexedrine.
Paul was classified as learning disabled and transferred to a school in another town with "a better Special Education class" and a teacher who "was used to dealing with ADHD children and knew how to handle them." An Individualized Education Program (IEP) was created for him for first grade.
Bad to Worse
The Johnstons took Paul to a physician in another town, who ordered a series of tests. "[This] doctor could not answer any of my questions about why Paul was so sick," Mrs. Johnston wrote. "He sent all of Paul's lab work to doctors out of state with the hope that they could help. To him, this was a child in need of help, but knowing what to do was another thing. But at least he did not view my son as being crazy."
Another new clinic doctor prescribed 100 mgs. of the drug Tofranil for Paul. His school work suffered, and he began fighting with other children. The Johnstons became pariahs in their neighborhood. Paul's two sisters, one older and another much younger, were traumatized by their brother's behavior. After one violent episode that resulted in a call to police, child protective services threatened to remove the girls from the home.
On several occasions, the Johnstons took Paul to local hospitals in an effort to get help. Typically, Paul's clinic doctors would not be available for consultation and he was sent home without treatment. The child pilfered knives and other household "weapons" with which he planned to kill himself. His parents took turns keeping night vigils at his bedside to prevent him from harming himself or his sisters. By now, he was having hallucinations, seeing strange lights and hearing voices.
Yet another clinic doctor arranged for Paul to be admitted to the children's psychiatric ward at a hospital in the town of Huntington. Dr. Raissi told Mrs. Johnston that she hoped this would take care of Paul's problems, but was not sure. During a 10-day hospital stay, Paul was diagnosed with Major Effective Disorder with psychotic features, and Oppositional Defiant Disorder. He was taken off Tofranil and put on Nortriptyline and Risperdal. He was discharged and referred to a psychiatrist named Dr. Shah.
Dr. Shah "never answered any of my questions," Mrs. Johnston wrote in her diary, "and he never said much of anything, except to threaten to put Paul back in the hospital if he 'acted out' again."
During Paul's first year of junior high in the fall of 1998, yet another new doctor took over his case. Dr. Faheem took Paul off Risperdal and put him on Zyprexa, which he said was better for controlling mood swings and hallucinations.
"All Dr. Faheem wanted me to do was admit that there were several people in my family who had some form of mental illness," Mrs. Johnston recalled. "One day I gave in and just made up a list for this man. It seemed to please him, and he became more willing to help Paul."
Paul was soon in trouble again in school and, although Mrs. Johnston found that not all that happened was her son's fault, she thought better of making waves because her husband Kenny was now working for the school district. "It is well known that you don't offend the school board," she wrote. " If you do, you won't work and your child will pay for it."
At the start of 2000, a school psychiatrist diagnosed Paul as "bipolar," explaining that children with this disorder are often misdiagnosed with ADHD. She promised relief with the drugs Lithobid and Paxil, but Paul's mood swings and problems at school continued.
Since Paul had been labeled mentally ill, his teachers seemed to write him off as unable to learn. One teacher even hit him several times in the head with a tennis ball while he slept during class, raising an egg-sized lump. Mrs. Johnston demanded an IEP meeting and brought along her tape recorder. During the session, at least one educator, who did not realize the meeting was being taped, disparaged and mimicked her son.
Following the IEP session, school administrators tried to influence Paul's father not to make waves by giving him more work at the school. "They told him that everything that goes on within the school stays within the school, which caused trouble between Kenny and me," Joy Johnston wrote. "They were trying to divide us against Paul, and there was nothing I could do."
The family began receiving threatening phone calls. An unidentified voice observed "how good my oldest daughter was doing in school," Joy stated, "and said it would be awful if something happened to stop this . . . Sometimes," the voice continued, "a child who has problems like Paul's is removed from the home because his parents cannot take care of him and the family abuses him."
Commitment to Barboursville
The Johnstons were referred to the Barboursville School, a state mental facility for children. A spokesman told them that children are normally committed for three to six months and that the school has "a wonderful program for teens, which teaches them self-control and personal care." Paul's clinic doctor and the school counselor agreed that Barboursville might provide the care the boy needed, and the Johnstons scheduled a hearing before a state "mental hygiene commissioner" to commit their son.
After the hearing, Mrs. Johnston discovered that the court papers called for a commitment of two years. "I felt my heart sink," she wrote in her diary. "Paul was only supposed to stay for three months; six if necessary . . . I felt scared and confused, but maybe someone at the school could explain." His caseworker reiterated that the average stay for most children was three to six months depending on how they responded to treatment.
The Johnstons soon realized that Barboursville was not what they expected. After their first few visits, Paul began exhibiting fear and excessive hunger. Later, they found marks on his body, including a burn, as though he were being abused. When questioned, the child was evasive.
Breakthrough at Last
Mrs. Johnston's research led her to Dr. Peter Breggin of Maryland, head of the Center for the Study of Psychiatry and Psychology and author of Talking Back to Ritalin. She wrote Dr. Breggin about her son's condition. Within a week, he contacted her to discuss Paul's case. He advised her to get the boy released from the mental institution as soon as possible, that they needed to wean Paul off the "very dangerous medications" he was taking, none of which "were FDA approved for children under the age of 18." Dr. Breggin felt sure that Paul was not mentally ill, but suffering from drug-induced psychoses.
Battle for Release
Ellen Beamon sent faxes to her contacts describing Paul's situation and how his parents could not arrange his release from Barboursville despite evidence of maltreatment.
Joy Johnston was near despair. She had lost her firstborn son to death, now she felt she had lost her second son to "the system." With renewed determination, she began phoning attorneys from a list Ellen Beamon had provided. A week later, she called the last one, Richard Beckner of nearby Oak Hill. No other attorney was willing to take on the system, but Beckner was a young father who understood what psychotropic drugs could do to children. When the Johnstons described the drug dosages Paul was taking, he shook his head in disbelief.
Beckner explained that it would not be easy, but that he would do everything in his power to overturn the court order. Alerted by Ellen Beamon, the Rutherford Institute also got involved and agreed to pay part of the financial cost.
When the Johnstons visited their son, he apologized for his appearance. Most of his clothes had been stolen, he said, and he was not allowed to wash those that remained or even to take a bath. He said the staff told him he would never get out of the hospital and that his parents didn't want him. When the Johnstons protested this treatment, they were escorted off the institution's premises by security guards.
Richard Beckner succeeded in arranging another hearing. Dr. Clark testified that the Johnstons had refused to let her help their son and that Paul was "a danger" to himself and others and should not be released. She stated that Paul "may never be stable" and that he could be institutionalized "for the rest of his life." The Johnstons contradicted Dr. Clark's testimony and submitted information supplied by Dr. Breggin about the side effects of the drugs their son was taking. After a lengthy hearing, the judge ordered the two sides to "come to an agreement."
In the end, Dr. Clark and the Barboursville School director were alone in pushing for Paul to remain institutionalized and the court ordered his immediate release.
Given the family's ordeal at the hands of the public school system, Mrs. Johnston decided to homeschool her son. She was told that Paul performed at third-grade level and that he would probably not be able to do any better. But he has since completed 8th grade and will begin 9th grade in the fall. Paul's older sister, Vickie, is expected to test out of high school next year, and his younger sister, Destiny, will attend private school in the fall. "I feel she will achieve more in that setting," Mrs. Johnston explains, "and the fear of a 'Ritalin Roundup' is not a factor."
Lawsuits are pending against the physicians who treated Paul, and Mrs. Johnston plans to remain vocal about the misdiagnoses of children, in the hope of "stopping the madness for those children who remain lost in the system." "I learned about forced psychiatric drugging the hard way," she admits. "Parents aren't told about the adverse reactions Ritalin and other drugs cause."
"It is very difficult for people to understand about drug-induced psychosis," she continues. "So many of our children are suffering from it, and few in the field of psychiatry will even talk about it. The internet literally saved Paul's life. Parents should remember that research can do wonders because knowledge is power."